Vivre avec une maladie rare: des histoires de...
Vivre avec une maladie rare: des histoires de patients et les familles http://t.co/kRMn1eNm6e
July 25, 2015
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Living with a Rare Disease: stories from patients and families
Most rare diseases have no cure, so living with a rare disease is an ongoing learning experience for patients and families. Here is a collection of stories and videos from people who have generously shared their experiences of living with a rare disease. Would you like to share you own experience?